P·FOCUS
Promoting Agency Through Innovative Education & Networked Teams
PATIENT-FOCUS facilitates outcomes and collaboration for understanding the brain–heart system. This project connects researchers, clinicians, and patients to promote agency in heart failure care — particularly through networked team models that position patients as active contributors to clinical research and care planning.
Supported By
Guiding Questions
Research Questions
- 1
How can networked team models promote patient agency in brain-heart failure care?
- 2
What educational interventions support patients in becoming active participants in clinical research?
- 3
How do patients experience their agency within specialized cardiac care settings?
Approach
Methods Overview
Mixed-methods pilot study including patient and caregiver interviews, clinician survey, and co-design workshops to develop agency-enhancing educational materials for the brain-heart failure context.
Outputs
Publications
2026
Recruitment Messaging and Patient Agency in Clinical Research—Beyond Enrollment
Code, J.
JAMA Network Open
DOI →2025
Agency in action: Engaging patient participation in research
Code, J., Lannon, H., & Lutrin, A.
Patient Education and Counseling, 141, 109353
DOI →2024
At the heart of resilience: Empowering women's agency in navigating cardiovascular disease
Code, J.
CJC Open, 6(2), 473–484
DOI →See Also
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