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JillianneCode
Press & Speaking

Media & Press

Jillianne Code offers expert comment on digital education, AI in learning, patient empowerment, and women’s cardiovascular health. As a Canada Research Chair, documentary subject, and co-founder of a national patient charity, she bridges academic rigour and lived experience.

Press Kit

  • High-res headshot (colour & B&W)
  • Short bio (50 & 150 words)
  • Research summary
  • Selected publications list
50+
Media appearances
National
CBC · CTV · Global
Keynote
International speaker
Documentary
My Broken Heart
My Broken Heart — Documentary poster
Documentary Film

My Broken Heart

A documentary film exploring the unknown, unexpected, and sometimes dire consequences of heart transplantation — and the patient voices that rarely make it into clinical conversations.

Directed by Nick Zap, the film follows Jillianne and other heart transplant recipients as they navigate a medical system that too often speaks about patients rather than with them. The documentary connects directly to her research on patient agency and the conditions under which patients can participate as knowledge producers and advocates.

Full story on Bio page

For Journalists

Areas of Expertise

Postdigital education & AI in schools

How learners and teachers navigate the integration of artificial intelligence in educational contexts, and what it means for learner agency.

Patient empowerment & heart failure

The conditions under which patients can participate as knowledge producers and advocates in their own care — drawing on 20 years of research and lived experience.

Women's heart health

Addressing gaps in how cardiovascular disease presents in and affects women — a research priority connecting Jillianne's advocacy and academic work.

Canada Research Chair in Learner Agency

The intersection of education and health: what it means for systems, institutions, and individuals when people are given the conditions to exercise genuine agency.

Selected Work

Press & Publications

2026
JAMA Network Open

Beyond enrollment: Recruitment messaging and patient agency in clinical research

2022
JACC: Heart FailureFrom patient to agent
2019
JACC: Heart FailureI am the clinical trial

Recognition

Awards & Honours

2022

Effective Voice of the Year Award

World Heart Federation

2025

YWCA Woman of Distinction — Health & WellnessFinalist

YWCA

2022

Killam Teaching Prize

UBC / Killam Foundation

2024

Killam Faculty Research Fellowship

UBC / Killam Foundation

Speaking

Selected Keynotes & Invited Talks

2024

Postdigital Learner Agency in the Age of AI

University of Edinburgh, Centre for Research in Digital Education

2024

Patient Agency in Cardiovascular Care

American Heart Association

2022

Keynote: Agency, Identity, and the Future of Learning

EdMedia World Conference on Educational Media & Technology

2022

From Patient to Agent: Reframing the Clinical Encounter

World Heart Federation

2021

Learner Agency in Virtual Environments

American Educational Research Association

Personal Narrative

Heart Failure to Harvard

A personal narrative about the arc from heart transplant recipient to Harvard postdoctoral fellow to Canada Research Chair — exploring what it means to live and work at the intersection of patient experience and academic scholarship.

Read the blog

“I am the clinical trial.”

Jillianne Code

Available for media inquiries & speaking engagements

Typically responds within two business days. For urgent inquiries please note the deadline in your message.

Get in touch

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