Brain-HF
Brain & Heart Failure Priority Setting Partnership
Under the direction of PI Dr. Karen Bouchard (UOHI), the Brain-HF Priority Setting Partnership aims to identify the most important unanswered questions about the brain–heart connection in heart failure, centring patient and caregiver voices throughout. Priority-setting partnerships are a well-established method in health research for ensuring that research agendas reflect patient priorities rather than only researchers' interests.
Supported By
In Collaboration With
Social Connections Lab
HeartLife FoundationGuiding Questions
Research Questions
- 1
What are the most important unanswered questions at the intersection of brain and heart failure, as identified by patients, caregivers, and clinicians?
- 2
How can patients and caregivers be genuinely centred in the priority-setting process?
- 3
What conditions support meaningful patient agency within structured research priority-setting?
Approach
Methods Overview
James Lind Alliance Priority Setting Partnership methodology: online survey to gather uncertain treatment questions from patients, caregivers, and clinicians; systematic review to check against existing evidence; consensus workshop to rank top priorities.
team note
People
Project Team
Outputs
Publications
2026
Recruitment Messaging and Patient Agency in Clinical Research—Beyond Enrollment
Code, J.
JAMA Network Open
DOI →2025
Agency in action: Engaging patient participation in research
Code, J., Lannon, H., & Lutrin, A.
Patient Education and Counseling, 141, 109353
DOI →2024
At the heart of resilience: Empowering women's agency in navigating cardiovascular disease
Code, J.
CJC Open, 6(2), 473–484
DOI →See Also
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