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JillianneCode
Service & Advocacy

Community

My service advances inclusion through academic leadership, mentorship, and patient advocacy. At UBC, I lead equity-oriented initiatives in Curriculum and Pedagogy. Beyond the university, I co-founded the HeartLife Foundation of Canada, a national patient-led organization that promotes equitable access to heart failure care and education, with attention to women, Indigenous communities, and people with disabilities.

I also serve on Health Canada’s Scientific Advisory Committee on Cardiovascular Devices and Mitewekan, a national Indigenous health council guiding culturally safe cardiovascular research.

HeartLife
Co-Founder · 2016
YWCA
Woman of Distinction Finalist
WHF
Effective Voice of the Year
CCS
Herald Segall Award of Merit
Patient Advocacy

HeartLife Foundation

In 2016, I co-founded the HeartLife Foundation — the first and only heart failure charity in Canada run by patients for patients. Our mission is to engage, educate, and empower people living with heart failure.

HeartLife is a strategic partner with the Canadian Cardiovascular Society, the Canadian Heart Failure Society, the Heart and Stroke Foundation, the Global Heart Hub, and the World Heart Federation. Key initiatives include the HeartLife Academy — a platform bridging the gap between patients, healthcare providers, and the wider community.

Along with co-founders Marc Bains and Dr. Sean Virani (UBC), I received the Dr. Harold N. Segall Award of Merit from the CCS in 2019 and Effective Voice of the Year from the World Heart Federation in 2022.

Roles

Service & Advisory Positions

2016–present

HeartLife Foundation of Canada

Co-Founder & Board Member

Co-founded the first and only heart failure charity in Canada run by patients for patients. HeartLife's mission is to engage, educate, and empower people living with heart failure. Strategic partner with the CCS, CHFS, Heart and Stroke Foundation, Global Heart Hub, and World Heart Federation.

heartlife.com

2019–present

Health Canada

Scientific Advisory Committee on Cardiovascular Devices (SAC-MDUCS)

Ensuring patient and disability perspectives inform national policy and device regulation for cardiovascular devices.

2023–present

Mitewekan

Indigenous Research Advisory Circle

Mitewekan (ᒥᑌᐍᑲᐣ, Cree: "the spirit behind the heartbeat") brings together Indigenous Elders, Knowledge Holders, individuals with lived experience, and researchers to guide culturally safe cardiovascular research across Canada.

mitewekan.ca

2022–present

Canadian Women's Heart Health Alliance

Education and Training Committee

Advancing education and training related to women's heart and brain health across Canada.

2017–present

Heart & Stroke Foundation

Heart Failure Mission Critical Area Committee

Contributing to the national strategy for heart failure research and policy through the Mission Critical Area and Women's Heart & Brain Health Research Steering Committee.

2018–present

Global Heart Hub

Heart Failure Patient Council

International patient advocacy for heart failure — representing Canadian patient voices in global cardiovascular policy and research.

2016–present

Cardiac Services BC / PHSA

Senior Patient Advisor

Advising the Provincial Health Services Authority's Cardiac Services Steering Committee on patient-centred care.

2016–present

Government of British Columbia

Public Beneficiary Representative, Medical Services Commission

Representing the public interest on the Medical Services Commission of BC.

Recognition

Awards for Service

  • 2025

    YWCA Woman of Distinction — Finalist

    Community Champion

  • 2022

    Effective Voice of the Year

    World Heart Federation — HeartLife Foundation

  • 2019

    Dr. Harold N. Segall Award of Merit

    Canadian Cardiovascular Society

Publishing

Editorial Roles

  • Canadian Journal of Science, Mathematics and Technology Education

    Associate Editor (Technology)2023–present
  • Journal of Cardiac Failure

    Editor — Education and Knowledge Translation2020–present

Interested in collaborating on patient advocacy or community initiatives?

I welcome partnerships in health advocacy, knowledge mobilization, and community engagement.

Get in touch