PACE
Patient Agency in Cardiovascular Education
PACE is a pilot study examining how educational interventions can promote agency in patients living with heart failure. Grounded in Jillianne's theoretical work on patient agency and her lived experience as a heart transplant recipient, the project develops and tests patient-centred approaches to heart failure self-management and advocacy — designed with patients, not just for them.
Guiding Questions
Research Questions
- 1
What educational approaches best support the development of patient agency in heart failure self-management?
- 2
How do patients describe and experience their own agency within the healthcare system?
- 3
What conditions enable patients to move from passive recipients of care to active knowledge producers and advocates?
Approach
Methods Overview
Qualitative pilot study with semi-structured interviews, participatory co-design of educational resources with a patient advisory panel, and iterative testing of agency-promoting interventions in clinical and community settings.
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