2022
28.
Code, J
From patient to agent Journal Article
In: Journal of Cardiac Failure, vol. 8, no. 7, pp. 1230-1234, 2022.
BibTeX | Altmetric | Tags: advocacy, autoethnography, editorial, heart failure | Links:
@article{Code2022c,
title = {From patient to agent},
author = {J Code},
doi = {https://doi.org/10.1016/j.cardfail.2022.04.007},
year = {2022},
date = {2022-07-01},
urldate = {2022-06-17},
journal = {Journal of Cardiac Failure},
volume = {8},
number = {7},
pages = {1230-1234},
keywords = {advocacy, autoethnography, editorial, heart failure},
pubstate = {published},
tppubtype = {article}
}
2020
27.
Code, J
The democratization of heart failure: Connecting voices from Canada's other pandemic Conference
University of Toronto EMPOWER-HF Virtual Roundtable, Toronto, ON [Virtual], 2020.
Abstract | BibTeX | Tags: autoethnography, democratization, heart failure, learner agency, RCT
@conference{Code2020e,
title = {The democratization of heart failure: Connecting voices from Canada's other pandemic},
author = {J Code},
year = {2020},
date = {2020-06-19},
publisher = {EMPOWER-HF Virtual Roundtable},
address = {Toronto, ON [Virtual]},
organization = {University of Toronto},
abstract = {Code, J. (2020, June). The democratization of heart failure: Connecting voices from Canada's other pandemic. In H. Ross (Chair), EMPOWER-HF Virtual Roundtable, Toronto, ON.},
keywords = {autoethnography, democratization, heart failure, learner agency, RCT},
pubstate = {published},
tppubtype = {conference}
}
Code, J. (2020, June). The democratization of heart failure: Connecting voices from Canada's other pandemic. In H. Ross (Chair), EMPOWER-HF Virtual Roundtable, Toronto, ON.
26.
Roston, T M, Bains, M, Code, J, Virani, S A
Heart failure in the young: The patient perspective and lived-experience Journal Article
In: Canadian Journal of General Internal Medicine, vol. 15, no. SP1, pp. 36–39, 2020.
Abstract | BibTeX | Altmetric | Tags: autoethnography, heart failure, lived experience | Links:
@article{roston2020heart,
title = {Heart failure in the young: The patient perspective and lived-experience},
author = {T M Roston and M Bains and J Code and S A Virani},
doi = {10.22374/cjgim.v15iSP1.418},
year = {2020},
date = {2020-01-01},
journal = {Canadian Journal of General Internal Medicine},
volume = {15},
number = {SP1},
pages = {36--39},
abstract = {Heart failure (HF) is an often-debilitating syndrome that carries a lifelong burden of increased morbidity and mortality. While most affected individuals are elderly with ischemic heart disease, there are subsets of younger individuals who will develop HF. In this group, non-ischemic causes of cardiomyopathy are more common, optimal therapies are less clear, and the personal and societal impact is often greater. The lived-experience of younger patients highlights several unmet needs not addressed by large HF trials that influence survival, personal and financial wellness and return to activities of daily living. In Canada, there is an increasing focus on the patient perspective, especially amongst young individuals, when devising guidelines, policies and promoting advocacy in HF. This article describes the lived-experience of HF through the case example of a young patient, summarizes the clinical challenges in this age-group, and discusses opportunities to elevate the patient experience of care as a performance indicator.},
keywords = {autoethnography, heart failure, lived experience},
pubstate = {published},
tppubtype = {article}
}
Heart failure (HF) is an often-debilitating syndrome that carries a lifelong burden of increased morbidity and mortality. While most affected individuals are elderly with ischemic heart disease, there are subsets of younger individuals who will develop HF. In this group, non-ischemic causes of cardiomyopathy are more common, optimal therapies are less clear, and the personal and societal impact is often greater. The lived-experience of younger patients highlights several unmet needs not addressed by large HF trials that influence survival, personal and financial wellness and return to activities of daily living. In Canada, there is an increasing focus on the patient perspective, especially amongst young individuals, when devising guidelines, policies and promoting advocacy in HF. This article describes the lived-experience of HF through the case example of a young patient, summarizes the clinical challenges in this age-group, and discusses opportunities to elevate the patient experience of care as a performance indicator.
2019
25.
Code, J, Gunther, P
The role of mental health studies in cardiovascular trials Conference
16th Global Cardiovascular Clinical Trialists Forum (CVCT) Washington, DC, 2019.
Abstract | BibTeX | Tags: autoethnography, heart failure, RCT
@conference{Code2019d,
title = {The role of mental health studies in cardiovascular trials},
author = {J Code and P Gunther},
editor = {C Chauhan and D Janssen},
year = {2019},
date = {2019-12-02},
address = {Washington, DC},
organization = {16th Global Cardiovascular Clinical Trialists Forum (CVCT)},
abstract = {Code, J. \& Gunther, P. (2019, December). The role of mental health studies in cardiovascular trials. In C. Chauhan \& D. Janssen (Chairs), Empowering patients to be active participants in clinical trials. Invited panel at the 16th Global Cardiovascular Clinical Trialists Forum (CVCT), Washington, DC, USA.},
keywords = {autoethnography, heart failure, RCT},
pubstate = {published},
tppubtype = {conference}
}
Code, J. & Gunther, P. (2019, December). The role of mental health studies in cardiovascular trials. In C. Chauhan & D. Janssen (Chairs), Empowering patients to be active participants in clinical trials. Invited panel at the 16th Global Cardiovascular Clinical Trialists Forum (CVCT), Washington, DC, USA.
24.
Code, J, Sloan, J
16th Global Cardiovascular Clinical Trialists Forum (CVCT) Washington, DC, 2019.
Abstract | BibTeX | Tags: autoethnography, heart failure, RCT
@conference{Code2019c,
title = {How to report and critique major trials in cardiology from a statistical perspective, including recent statistical advances \textendash Patient viewpoints},
author = {J Code and J Sloan},
editor = {S Pocock and J Gregson},
year = {2019},
date = {2019-12-01},
address = {Washington, DC},
organization = {16th Global Cardiovascular Clinical Trialists Forum (CVCT)},
abstract = {Code, J. \& Sloan, J. (2019, December). How to report and critique major trials in cardiology from a statistical perspective, including recent statistical advances \textendash Patient viewpoints. In S. Pocock \& J. Gregson (Chairs), CVCT Masterclass. Invited panel at the 16th Global Cardiovascular Clinical Trialists Forum (CVCT), Washington, DC, USA.},
keywords = {autoethnography, heart failure, RCT},
pubstate = {published},
tppubtype = {conference}
}
Code, J. & Sloan, J. (2019, December). How to report and critique major trials in cardiology from a statistical perspective, including recent statistical advances – Patient viewpoints. In S. Pocock & J. Gregson (Chairs), CVCT Masterclass. Invited panel at the 16th Global Cardiovascular Clinical Trialists Forum (CVCT), Washington, DC, USA.
23.
Code, J, Verbakel, M
Patient reported outcomes: Why CV prevention trials are critical for patients Conference
16th Global Cardiovascular Clinical Trialists Forum (CVCT) Washington, DC, 2019.
Abstract | BibTeX | Tags: autoethnography, RCT
@conference{Code2019e,
title = {Patient reported outcomes: Why CV prevention trials are critical for patients},
author = {J Code and M Verbakel},
editor = {B Pitt and H Ventura},
year = {2019},
date = {2019-12-01},
address = {Washington, DC},
organization = {16th Global Cardiovascular Clinical Trialists Forum (CVCT)},
abstract = {Code, J. \& Verbakel, M. (2019, December). Patient-reported outcomes: Why CV prevention trials are critical for patients. In B. Pitt \& H. Ventura (Chairs), Diet, hypertension and CV prevention trials. Invited panel at the 16th Global Cardiovascular Clinical Trialists Forum (CVCT), Washington, DC, USA.},
keywords = {autoethnography, RCT},
pubstate = {published},
tppubtype = {conference}
}
Code, J. & Verbakel, M. (2019, December). Patient-reported outcomes: Why CV prevention trials are critical for patients. In B. Pitt & H. Ventura (Chairs), Diet, hypertension and CV prevention trials. Invited panel at the 16th Global Cardiovascular Clinical Trialists Forum (CVCT), Washington, DC, USA.
22.
Code, J, Others,
Canadian Cardiovascular Congress Montreal, QUE, 2019.
Abstract | BibTeX | Tags: autoethnography, heart failure, RCT
@conference{Code2019f,
title = { Shifting the research to action paradigm: The complex connections among cardiovascular disease, stroke and vascular cognitive impairment},
author = {J Code and Others},
editor = {Heart \& Stroke Foundation},
year = {2019},
date = {2019-10-27},
address = {Montreal, QUE},
organization = {Canadian Cardiovascular Congress},
abstract = {Code, J. et al. (2019, October). Shifting the research to action paradigm: The complex connections among cardiovascular disease, stroke and vascular cognitive impairment [Panel]. Invited panel at the Heart and Stroke Foundation Spotlight Session at the Canadian Cardiovascular Congress, Montreal, QUE.},
keywords = {autoethnography, heart failure, RCT},
pubstate = {published},
tppubtype = {conference}
}
Code, J. et al. (2019, October). Shifting the research to action paradigm: The complex connections among cardiovascular disease, stroke and vascular cognitive impairment [Panel]. Invited panel at the Heart and Stroke Foundation Spotlight Session at the Canadian Cardiovascular Congress, Montreal, QUE.
21.
Code, J
Unbundled learning with heart failure Conference
Heart Failure Society of America Annual Meeting Philadelphia, PA, 2019.
Abstract | BibTeX | Tags: autoethnography, learner agency, social media
@conference{Code2019g,
title = {Unbundled learning with heart failure},
author = {J Code},
editor = {R Starling and S Zieroth},
year = {2019},
date = {2019-10-20},
address = {Philadelphia, PA},
organization = {Heart Failure Society of America Annual Meeting},
abstract = {Code, J. (2019, September). Unbundled learning with heart failure. In R. Starling and S. Zieroth (Chairs), Barriers to implementation of new therapies. Invited panel at the Heart Failure Society of America Annual Meeting, Philadelphia, PA, USA. },
keywords = {autoethnography, learner agency, social media},
pubstate = {published},
tppubtype = {conference}
}
Code, J. (2019, September). Unbundled learning with heart failure. In R. Starling and S. Zieroth (Chairs), Barriers to implementation of new therapies. Invited panel at the Heart Failure Society of America Annual Meeting, Philadelphia, PA, USA.
20.
Code, J, Bains, M
Patient and family carer round table Presentation
2019, (Heart Failure Update 2019, Montreal, QUE.).
Abstract | BibTeX | Tags: autoethnography, heart failure
@misc{Code2019k,
title = { Patient and family carer round table},
author = {J Code and M Bains},
year = {2019},
date = {2019-05-18},
abstract = {Code, J. \& Bains. M. (2019, May). Patient and family carer round table [Chairs]. Heart Failure Update 2019, Montreal, QUE.},
note = {Heart Failure Update 2019, Montreal, QUE.},
keywords = {autoethnography, heart failure},
pubstate = {published},
tppubtype = {presentation}
}
Code, J. & Bains. M. (2019, May). Patient and family carer round table [Chairs]. Heart Failure Update 2019, Montreal, QUE.
19.
Code, J
Patient-led advocacy to support health system transformation and improved heart failure care Conference
American College of Cardiology Annual Meeting (ACC.19) New Orleans, LA, 2019.
Abstract | BibTeX | Tags: advocacy, autoethnography, heart failure, social media
@conference{Code2019h,
title = {Patient-led advocacy to support health system transformation and improved heart failure care},
author = {J Code},
editor = {A Krahn and J Pineiro and P Torres},
year = {2019},
date = {2019-03-17},
address = {New Orleans, LA},
organization = {American College of Cardiology Annual Meeting (ACC.19)},
abstract = {Code, J. (2019, March). Patient-led advocacy to support health system transformation and improved heart failure care. In A. Krahn, J. Pineiro \& P. Torres (Chairs), Heart failure advocacy and international perspectives. Invited symposium at the American College of Cardiology Annual Meeting (ACC.19), New Orleans, LA, USA.},
keywords = {advocacy, autoethnography, heart failure, social media},
pubstate = {published},
tppubtype = {conference}
}
Code, J. (2019, March). Patient-led advocacy to support health system transformation and improved heart failure care. In A. Krahn, J. Pineiro & P. Torres (Chairs), Heart failure advocacy and international perspectives. Invited symposium at the American College of Cardiology Annual Meeting (ACC.19), New Orleans, LA, USA.
18.
Code, J
I am the clinical trial Journal Article
In: JACC: Heart Failure, vol. 7, no. 5, pp. 439-441, 2019.
BibTeX | Tags: autoethnography, clinical trial, heart failure, qualitative
@article{Code2019,
title = {I am the clinical trial},
author = {J Code},
year = {2019},
date = {2019-01-01},
journal = {JACC: Heart Failure},
volume = {7},
number = {5},
pages = {439-441},
keywords = {autoethnography, clinical trial, heart failure, qualitative},
pubstate = {published},
tppubtype = {article}
}
2018
17.
Code, J, &, Others
CV Trial related questions patients want answered Conference
15th Global Cardiovascular Clinical Trialists Forum (CVCT) Washington, DC, 2018.
Abstract | BibTeX | Tags: autoethnography, heart failure, RCT
@conference{Code2018,
title = {CV Trial related questions patients want answered},
author = {J Code and Others \&},
editor = {C Chauhan and A Lenselink},
year = {2018},
date = {2018-12-02},
address = {Washington, DC},
organization = {15th Global Cardiovascular Clinical Trialists Forum (CVCT)},
abstract = {Ahmed, C., Chauhan, C., Code, J., Dahlgren, K., Jefferson, N. et al. (2018, December). CV Trial related questions patients want answered [Panel, listed alphabetically]. In C. Chauhan \& A. Lenselink (Chairs), Invited panel at the 15th Global Cardiovascular Clinical Trialists Forum (CVCT), Washington, DC, USA.},
keywords = {autoethnography, heart failure, RCT},
pubstate = {published},
tppubtype = {conference}
}
Ahmed, C., Chauhan, C., Code, J., Dahlgren, K., Jefferson, N. et al. (2018, December). CV Trial related questions patients want answered [Panel, listed alphabetically]. In C. Chauhan & A. Lenselink (Chairs), Invited panel at the 15th Global Cardiovascular Clinical Trialists Forum (CVCT), Washington, DC, USA.
2017
16.
Code, J, Pike, R
The lived experience of cardiovascular nursing: A patient’s perspective Conference
Canadian Council for Cardiovascular Nurses Fall Conference Vancouver, BC, 2017.
Abstract | BibTeX | Tags: autoethnography, heart failure, lived experience
@conference{Code2017b,
title = {The lived experience of cardiovascular nursing: A patient’s perspective},
author = {J Code and R Pike},
year = {2017},
date = {2017-10-14},
address = {Vancouver, BC},
organization = {Canadian Council for Cardiovascular Nurses Fall Conference},
abstract = {Code, J. \& Pike, R. (2017, October). The lived experience of cardiovascular nursing: A patient’s perspective [Keynote]. In Canadian Council for Cardiovascular Nurses Fall Conference, Vancouver, BC.},
keywords = {autoethnography, heart failure, lived experience},
pubstate = {published},
tppubtype = {conference}
}
Code, J. & Pike, R. (2017, October). The lived experience of cardiovascular nursing: A patient’s perspective [Keynote]. In Canadian Council for Cardiovascular Nurses Fall Conference, Vancouver, BC.
15.
Code, J
A patient’s voice Conference
2017.
Abstract | BibTeX | Tags: autoethnography, heart failure
@conference{Code2017c,
title = {A patient’s voice},
author = {J Code},
year = {2017},
date = {2017-06-04},
abstract = {Code, J. (2017, June). A patient’s voice [Keynote]. In M. Toma, K. Ramanathan \& H. Nazzari (Chairs), UBC Heart Failure Symposium, Vancouver, BC.},
keywords = {autoethnography, heart failure},
pubstate = {published},
tppubtype = {conference}
}
Code, J. (2017, June). A patient’s voice [Keynote]. In M. Toma, K. Ramanathan & H. Nazzari (Chairs), UBC Heart Failure Symposium, Vancouver, BC.
14.
Catlin, B, Code, J
Canadian Council for Cardiovascular Nurses Spring Conference Victoria, BC, 2017.
Abstract | BibTeX | Tags: autoethnography, heart failure
@conference{Catlin2017,
title = {The evolution of BC's provincial heart failure strategy: It's influence on clinical practice and patient care},
author = {B Catlin and J Code},
year = {2017},
date = {2017-05-28},
address = {Victoria, BC},
organization = {Canadian Council for Cardiovascular Nurses Spring Conference},
abstract = {Catlin, B. \& Code, J. (2017, May). The evolution of BC's provincial heart failure strategy: It's influence on clinical practice and patient care [Keynote]. In Canadian Council for Cardiovascular Nurses Spring Conference, Victoria, BC.},
keywords = {autoethnography, heart failure},
pubstate = {published},
tppubtype = {conference}
}
Catlin, B. & Code, J. (2017, May). The evolution of BC's provincial heart failure strategy: It's influence on clinical practice and patient care [Keynote]. In Canadian Council for Cardiovascular Nurses Spring Conference, Victoria, BC.
13.
Code, J
The who, what, why & how of advocacy for heart failure patients Presentation
2017.
Abstract | BibTeX | Tags: advocacy, autoethnography, heart failure
@misc{Code2017e,
title = {The who, what, why \& how of advocacy for heart failure patients},
author = {J Code},
year = {2017},
date = {2017-05-20},
abstract = {Code, J. (2017, May). The who, what, why \& how of advocacy for heart failure patients [Invited Session]. In Heart Failure Update, Canadian Heart Failure Society, Toronto, ON.},
keywords = {advocacy, autoethnography, heart failure},
pubstate = {published},
tppubtype = {presentation}
}
Code, J. (2017, May). The who, what, why & how of advocacy for heart failure patients [Invited Session]. In Heart Failure Update, Canadian Heart Failure Society, Toronto, ON.
2016
12.
Chan, A, Code, J, Miles, R, Ridout, B
Engaging in change: The power of storytelling to inspire action Conference
2016.
Abstract | BibTeX | Tags: autoethnography, heart failure
@conference{Chan2016,
title = {Engaging in change: The power of storytelling to inspire action},
author = {A Chan and J Code and R Miles and B Ridout},
year = {2016},
date = {2016-11-17},
abstract = {Chan, A., Code, J., Miles, R. \& Ridout, B. (2016, November). Engaging in change: The power of storytelling to inspire action [Plenary]. In BC Health Leadership Conference, Canadian College of Health Leaders, Vancouver, BC.},
keywords = {autoethnography, heart failure},
pubstate = {published},
tppubtype = {conference}
}
Chan, A., Code, J., Miles, R. & Ridout, B. (2016, November). Engaging in change: The power of storytelling to inspire action [Plenary]. In BC Health Leadership Conference, Canadian College of Health Leaders, Vancouver, BC.
11.
Code, J, Penner, B, Kearly, S
Are we meeting the health care needs of Canadians? Conference
2016.
Abstract | BibTeX | Tags: autoethnography, educational technology, ehealth
@conference{Code2016d,
title = {Are we meeting the health care needs of Canadians?},
author = {J Code and B Penner and S Kearly},
editor = {S Mahoney},
year = {2016},
date = {2016-11-15},
abstract = {Code, J., Penner, B. \& Kearly, S. (2016, November). Are we meeting the health care needs of Canadians? [Plenary] In S. Mahoney (Chair), 2016 Infoway Partnership Conference, Toronto, ON.},
keywords = {autoethnography, educational technology, ehealth},
pubstate = {published},
tppubtype = {conference}
}
Code, J., Penner, B. & Kearly, S. (2016, November). Are we meeting the health care needs of Canadians? [Plenary] In S. Mahoney (Chair), 2016 Infoway Partnership Conference, Toronto, ON.
10.
Code, J, Ezekowitz, J, Giannetti, N, Howlett, J
2016.
Abstract | BibTeX | Tags: autoethnography, heart failure
@conference{Code2016e,
title = {(Re)defining success in heart-failure management in Canada: Improving outcomes along the patient journey},
author = {J Code and J Ezekowitz and N Giannetti and J Howlett },
year = {2016},
date = {2016-10-28},
abstract = {Code, J., Ezekowitz, J., Giannetti, N., \& Howlett, J. (2016, October). (Re)defining success in heart-failure management in Canada: Improving outcomes along the patient journey [Plenary]. In P. Liu (Chair), Canadian Cardiovascular Congress, Montreal, QUE.},
keywords = {autoethnography, heart failure},
pubstate = {published},
tppubtype = {conference}
}
Code, J., Ezekowitz, J., Giannetti, N., & Howlett, J. (2016, October). (Re)defining success in heart-failure management in Canada: Improving outcomes along the patient journey [Plenary]. In P. Liu (Chair), Canadian Cardiovascular Congress, Montreal, QUE.
9.
Ackenhausen, M, Brown, S, Code, J, Seckel, A, &, Others
Joint Clinical Committee Showcase Conference
5th Annual Quality Forum BC Patient Safety & Quality Council, Vancouver, BC, 2016.
Abstract | BibTeX | Tags: autoethnography, heart failure
@conference{Ackenhausen2016,
title = {Joint Clinical Committee Showcase},
author = {M Ackenhausen and S Brown and J Code and A Seckel and Others \& },
year = {2016},
date = {2016-02-12},
publisher = {BC Patient Safety \& Quality Council},
address = {Vancouver, BC},
organization = {5th Annual Quality Forum},
abstract = {Ackenhausen, M., Brown, S., Code, J., \& Seckel, A., et al. (2016, February). Opening plenary panel [Plenary]. In Joint Clinical Committee Showcase, 5th Annual Quality Forum; BC Patient Safety \& Quality Council, Vancouver, BC.},
keywords = {autoethnography, heart failure},
pubstate = {published},
tppubtype = {conference}
}
Ackenhausen, M., Brown, S., Code, J., & Seckel, A., et al. (2016, February). Opening plenary panel [Plenary]. In Joint Clinical Committee Showcase, 5th Annual Quality Forum; BC Patient Safety & Quality Council, Vancouver, BC.
