Dr. Jillianne Code is a Canadian researcher, educator, and learning scientist specializing in learner agency, online learning technologies, and the impact of social media on student success and well-being. As the Director of the ALIVE Research Lab at the University of British Columbia, Dr. Code studies agency ‘unbundled’ from formal education, including video games, virtual reality, technology education, and social media communities.
Dr. Code’s most important role, however, is that of a heart failure survivor and two-time heart transplant recipient. Following her heart transplants, to honour the efforts of her medical team and the sacrifice of her donors, Dr. Code has worked to advocate for the inclusion of patients as partners in healthcare practice and research. In 2016, Dr. Code co-founded the HeartLife Foundation with Marc Bains, Canada’s first – and only – national patient-led heart failure organization that has grown to include a network of heart failure patients across Canada. In 2022, HeartLife was awarded Effective Voice of the Year by the World Heart Federation for the Heart Failure Patient and Family Caregiver Charter, which has since been translated into 17 languages by the Global Heart Hub and endorsed by more than 30 patient organizations worldwide.