2020
3.
Roston, T M, Bains, M, Code, J, Virani, S A
Heart failure in the young: The patient perspective and lived-experience Journal Article
In: Canadian Journal of General Internal Medicine, vol. 15, no. SP1, pp. 36–39, 2020.
Abstract | BibTeX | Altmetric | Tags: autoethnography, heart failure, lived experience | Links:
@article{roston2020heart,
title = {Heart failure in the young: The patient perspective and lived-experience},
author = {T M Roston and M Bains and J Code and S A Virani},
doi = {10.22374/cjgim.v15iSP1.418},
year = {2020},
date = {2020-01-01},
journal = {Canadian Journal of General Internal Medicine},
volume = {15},
number = {SP1},
pages = {36--39},
abstract = {Heart failure (HF) is an often-debilitating syndrome that carries a lifelong burden of increased morbidity and mortality. While most affected individuals are elderly with ischemic heart disease, there are subsets of younger individuals who will develop HF. In this group, non-ischemic causes of cardiomyopathy are more common, optimal therapies are less clear, and the personal and societal impact is often greater. The lived-experience of younger patients highlights several unmet needs not addressed by large HF trials that influence survival, personal and financial wellness and return to activities of daily living. In Canada, there is an increasing focus on the patient perspective, especially amongst young individuals, when devising guidelines, policies and promoting advocacy in HF. This article describes the lived-experience of HF through the case example of a young patient, summarizes the clinical challenges in this age-group, and discusses opportunities to elevate the patient experience of care as a performance indicator.},
keywords = {autoethnography, heart failure, lived experience},
pubstate = {published},
tppubtype = {article}
}
Heart failure (HF) is an often-debilitating syndrome that carries a lifelong burden of increased morbidity and mortality. While most affected individuals are elderly with ischemic heart disease, there are subsets of younger individuals who will develop HF. In this group, non-ischemic causes of cardiomyopathy are more common, optimal therapies are less clear, and the personal and societal impact is often greater. The lived-experience of younger patients highlights several unmet needs not addressed by large HF trials that influence survival, personal and financial wellness and return to activities of daily living. In Canada, there is an increasing focus on the patient perspective, especially amongst young individuals, when devising guidelines, policies and promoting advocacy in HF. This article describes the lived-experience of HF through the case example of a young patient, summarizes the clinical challenges in this age-group, and discusses opportunities to elevate the patient experience of care as a performance indicator.
2019
2.
Code, J, Bains, M, Virani, S A
The heart failure state of mind: An informal survey of Canadians with lived experience and the importance of considering cognitive impairment Journal Article
In: Canadian Journal of Cardiology, vol. 35, no. 7, pp. 941.e7, 2019.
BibTeX | Altmetric | Tags: heart failure, lived experience, mental health, quantitative, survey research | Links:
@article{Code_2019,
title = {The heart failure state of mind: An informal survey of Canadians with lived experience and the importance of considering cognitive impairment},
author = {J Code and M Bains and S A Virani},
doi = {10.1016/j.cjca.2019.03.019},
year = {2019},
date = {2019-07-01},
journal = {Canadian Journal of Cardiology},
volume = {35},
number = {7},
pages = {941.e7},
publisher = {Elsevier BV},
keywords = {heart failure, lived experience, mental health, quantitative, survey research},
pubstate = {published},
tppubtype = {article}
}
2017
1.
Code, J, Pike, R
The lived experience of cardiovascular nursing: A patient’s perspective Conference
Canadian Council for Cardiovascular Nurses Fall Conference Vancouver, BC, 2017.
Abstract | BibTeX | Tags: autoethnography, heart failure, lived experience
@conference{Code2017b,
title = {The lived experience of cardiovascular nursing: A patient’s perspective},
author = {J Code and R Pike},
year = {2017},
date = {2017-10-14},
address = {Vancouver, BC},
organization = {Canadian Council for Cardiovascular Nurses Fall Conference},
abstract = {Code, J. \& Pike, R. (2017, October). The lived experience of cardiovascular nursing: A patient’s perspective [Keynote]. In Canadian Council for Cardiovascular Nurses Fall Conference, Vancouver, BC.},
keywords = {autoethnography, heart failure, lived experience},
pubstate = {published},
tppubtype = {conference}
}
Code, J. & Pike, R. (2017, October). The lived experience of cardiovascular nursing: A patient’s perspective [Keynote]. In Canadian Council for Cardiovascular Nurses Fall Conference, Vancouver, BC.
